Misunderstanding abounded. Because we always talked positively and hopefully about Matty, people tended to think he was doing better than he was and were then shocked if they visited him to find that his gaze was either vacant or his eyes looked over to the right, that his skin was deteriorating and that he had spots and blackheads for the first time in his life.
— Cathy Rentzenbrink, The Last Act of Love (2015), p. 49.